DeafBlindness is a low-incidence but highly impactful disability affecting
individuals worldwide. While it may seem rare, it significantly affects those living with it due to severe communication and mobility challenges.
Global Perspective
The World Federation of the DeafBlind (WFDB) estimates that around 0.2% to 2% of the world’s population may be DeafBlind, with some regions reporting higher figures. Many cases go undocumented, particularly in low- and middle-income countries, where access to medical diagnosis and support services is limited.
The South African Context
In South Africa, determining the exact number of DeafBlind individuals is
challenging because:
- DeafBlindness is not officially categorized in national disability statistics.
- Current data collection methods—such as census disability questions—do not capture the full spectrum of DeafBlind experiences.
- Many DeafBlind individuals remain unidentified, particularly in rural and underserved communities.
Applying the global estimate of 0.2% to 2%, South Africa could have tens of thousands of DeafBlind individuals. However, the lack of dedicated research, outreach and recognition means that many remain unseen and unsupported.
The Hidden Minority
DeafBlind individuals are often misclassified within the disability sector—either as blind or deaf—without recognition of their distinct needs. This leads to gaps in policy, education and service provision, making it harder for them to access the resources they need to live independently.
DeafBlind South Africa’s Role
DeafBlind South Africa (DBSA) is working to bridge this gap by:
- Identifying and registering DeafBlind individuals to build an accurate national database.
- Advocating for better data collection to ensure DeafBlindness is recognized in disability policies.
- Expanding awareness and outreach to uncover and support those currently living without assistance.
Without accurate data, DeafBlind individuals risk being excluded from disability services and policy planning. Recognizing DeafBlindness as a distinct disability is the first step toward ensuring inclusion, access and equity in South Africa.